AUDIO

by Archbishop Peter Jensen
Archbishop Peter Jensen's Christmas Message 2011 on the centrality of Jesus to human history
Learning to love
Kara Martin
October 5th, 2011

Love, Tears & Autism by Cecily Paterson.

Cecily Paterson had struggled for many years to conceive her second child, so when she found out she was pregnant she was delighted. Cameron was a wonderful baby, sleeping well and very settled.

However, as he developed she became increasingly concerned about the way he seemed to lag behind other small children. He was slow in developing language, and seemed to avoid eye contact, was obsessed with buttons, and threw terrible tantrums unpredictably.

Finally, she became concerned enough to pursue a diagnosis, and was shocked to discover that he had both Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD).

A few weeks earlier, Cecily had been wondering and praying about the way God might use her, and she felt God say that he wanted to teach her how to love. Little could she imagine then that God’s way of teaching her how to love was through the experience of caring for her autistic child.

Love, Tears & Autism is the story of Cecily’s journey with Cameron, from heartbreak to hope.

As well as a moving story of her struggle and grief, passion and advocacy, faith and activism; this is a resource book for those in contact with autistic children. It provides advice, ideas, websites, as well as suggestions for parents, siblings, family and friends.

There are also excursions into faith issues, pursuing a more holistic theology of healing and grief.

Cecily makes herself very vulnerable in this book. She admits to anger, pride and despair. She is honest about the impact of the diagnosis and aftermath on her marriage, and on her treatment of their other two children: Jasmine and Max.

This is not a perfect book. I really wanted to see a photo of Cameron and his family. Also, the placement of Endorsements, Dedication, Acknowledgements, a Foreword and an Introduction before the story begins, makes it tough to get into the book.

It would be easy to see Love, Tears & Autism as only applicable to those families with direct contact with the 1 in 160 children born with ASD. With that level of prevalence, we are likely to come across a family in our social circles or school or church circles. So, it has wider application. It helps us to briefly enter the lives of any family who has a child who needs special care.

There is an extremely useful section detailing what an autistic child needs, including time, space and understanding; and calm conversation which invites, but doesn’t require a response.

It also outlines what the parent of an autistic child needs, including friends who will listen to their struggles without having to say something that makes it all okay; and the occasional night or afternoon off.

Importantly, there is some helpful advice for churches:

  • Ask parents what they need, and find a way to meet that need
  • Roster on or pay for a helper during Sunday School
  • Pray regularly for healing for the child, and strength for the family
  • Be aware of the stages of grief, and mindful of signs of depression
  • Support the siblings.

One of the most moving sections of the book was a letter from a friend (“your broken-hearted sister”) written at a time when Cecily went through a dark time with God over unanswered prayers for healing:

Here’s some tough love: you (and I) don’t know all the answers… You’ve spent months alone in pain, your heart is angry, you feel God is unjust and absent, and you’re soldiering on ministering to other souls in His name… And yet it’s times like this that shake us into knowing the real God. The one who doesn’t direct His plan according to our desires… I am praying that in your questioning, grief and anger you would be drawn to the cross where the deepest pain: ‘My God, my God, Why have you forsaken me?’ is your cause for greatest joy.

That is the sort of friendship we need to show to anyone caring for a child with needs.

Dan Baynes    09 October 2011 11:13am
"I really wanted to see a photo of Cameron and his family."

And I'd have appreciated at least one mention of his father.

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Andrew Paterson    10 October 2011 12:17am
G'day - I'm Andrew, Cecily's husband.

I've attached a message from Cecily for both Dan and all readers:

Hi Dan. I'm Cecily, the author of the book.
I'm presuming that you're talking about a mention of the father in the book review, rather than the book itself. Of course, the book talks about Cameron's dad and his important part in supporting him and helping him with therapy. However, this book is really my own story, and my own emotional and spiritual journey. And seeing as how a book review is limited in space, I can understand why there's not a specific mention of my husband in the review itself. When you read the book, you'll see that it does, in fact, cover the whole family.
It's not your comment, but there was a reason why I didn't want to have a photograph of Cameron in the book. As he grows up and comes to terms with his own life and his own journey, he'll deal with things in his own way. I've changed his name for the sake of privacy, and I wanted to keep his face out of the public for the same reason. Even though I know people enjoy photographs, in this case, it's just something my husband and I thought would be best for the family.
Hope you enjoy the book and that it's useful for your church.

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Dan Baynes    10 October 2011 10:35am
Thank you Cecily, and Andrew for taking the time to post. (Curiously your name is very nearly that of a cousin of mine!)

Glad to know that about the book - your points then are mainly for Kara as reviewer.

I have a nephew with autism so we do know something about it, albeit at a distance compared to yourselves.

God give you all grace and strength for your task.

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Kara Martin    13 October 2011 7:01am
Sorry, I am a bit late on this conversation.
Thanks for explaining that Cecily and Andrew. It is great to see the respect for your son, and that you are letting him have an opportunity to write his own life story.
Yes, I didn't mean to exclude Andrew, but the book is primarily from Cecily's perspective.
I am sure this is an enormous challenge for both parents. There was a particularly moving article in the Good Weekend a few months ago from a father talking about his experiences of parenting a child with ASD.
The challenge for us in churches is to ensure we support all families, and the special utility of Cecily's book is that she gives us lots of clues about how we might do that more effectively.
Thanks for all your comments :)

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